Sponsored by Biogen and offered through Invitae, a genetic testing provider, ALS Identified is a no-charge genetic-testing program for amyotropic lateral sclerosis (ALS). The program will test for mutations in more than 20 genes that are linked to ALS.
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SPONSORED BY BIOGEN AND OFFERED THROUGH INVITAE
Individuals 18 years of age or older in the US and Puerto Rico with a clinical diagnosis or family history of ALS will be eligible to participate in the program. This includes:
PATIENTS: People who have been given a diagnosis of ALS.
FAMILY: People who do not have ALS but have a family history of ALS.
Genetic testing may help you and your doctor have a deeper understanding of your ALS, providing you with more information about your diagnosis and...
May reveal if there is a genetic component that contributed to your developing ALS.
Help family members understand if they may be at risk for ALS as well.
May provide information as to whether the mutation(s) present are associated with fast- or slow-progressing disease.
Provide information to help you make more informed life choices, including long-term care needs and family planning.
Reveal whether you may be a candidate for clinical trials that are studying specific genetic forms of ALS.
Read Frequently Asked Questions about genetic testing for people living with ALS and their families, or talk to your doctor.
While third parties and commercial organizations may provide financial support for this program, tests and services are performed by Invitae. Healthcare professionals must confirm that patients meet certain criteria to use the program. Genetic testing is available in the US only. Healthcare professionals and patients who participate in this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use or support any other products or services from Invitae or from third parties or commercial organizations.